Platelet Type von Willebrand Disease http://www.pt-vwd.org PT-VWD.org Mon, 03 Nov 2008 21:21:06 +0000 http://wordpress.org/?v=2.3.1 en Results from PT-VWD Project Reported to ISTH-SSC on VWF, Vienna July 2008 http://www.pt-vwd.org/results-from-pt-vwd-project-reported-to-isth-ssc-on-vwd-vienna-july-2008/ http://www.pt-vwd.org/results-from-pt-vwd-project-reported-to-isth-ssc-on-vwd-vienna-july-2008/#comments Wed, 29 Oct 2008 14:48:14 +0000 Maha Othman http://www.pt-vwd.org/results-from-pt-vwd-project-reported-to-isth-ssc-on-vwd-vienna-july-2008/ October 26 2008

Data from the Canadian PT-VWD project was presented in the ISTH-SSC meeting on VWD on July 3-4 as a part of Updates on VWD registries. Click here to see minutes from the meeting

]]> http://www.pt-vwd.org/results-from-pt-vwd-project-reported-to-isth-ssc-on-vwd-vienna-july-2008/feed/ Preleminary Data from the Canadian PT-VWD project Presented in World Federation of Hemophilia Congress-Istanbul June 1-6 2008 http://www.pt-vwd.org/preleminary-data-from-the-canadian-pt-vwd-project-presented-in-world-federation-of-hemophilia-congress-istanbul-june-1-6-2008/ http://www.pt-vwd.org/preleminary-data-from-the-canadian-pt-vwd-project-presented-in-world-federation-of-hemophilia-congress-istanbul-june-1-6-2008/#comments Fri, 22 Aug 2008 19:59:22 +0000 Maha Othman http://www.pt-vwd.org/preleminary-data-from-the-canadian-pt-vwd-project-presented-in-world-federation-of-hemophilia-congress-istanbul-june-1-6-2008/ May 30 2008

Preleminary data from the Canadian PT-VWD project is presented in the WFH congress Istanbul 1-6 2008

For information clink here

]]> http://www.pt-vwd.org/preleminary-data-from-the-canadian-pt-vwd-project-presented-in-world-federation-of-hemophilia-congress-istanbul-june-1-6-2008/feed/ ISTH EQATH Program Distributes Information about the Canadian PT-VWD Project http://www.pt-vwd.org/isth-eqath-program-distributes-information-about-the-canadian-pt-vwd-project/ http://www.pt-vwd.org/isth-eqath-program-distributes-information-about-the-canadian-pt-vwd-project/#comments Fri, 22 Aug 2008 19:43:32 +0000 Maha Othman http://www.pt-vwd.org/isth-eqath-program-distributes-information-about-the-canadian-pt-vwd-project/ April 16 2008 

Through the ISTH EQATH, these participants have distributed information about the participation in the Canadian PT-VWD project:

RCPA-QAP: Australia
QMP-LS: Canada
LEECH: Spain
NASCOLA: United States

]]> http://www.pt-vwd.org/isth-eqath-program-distributes-information-about-the-canadian-pt-vwd-project/feed/ QMP-LS Distributes an Announcement Regarding the Canadian PT-VWD Project http://www.pt-vwd.org/qmp-ls-distributes-an-announcement-regarding-the-canadian-pt-vwd-project/ http://www.pt-vwd.org/qmp-ls-distributes-an-announcement-regarding-the-canadian-pt-vwd-project/#comments Fri, 22 Aug 2008 19:35:26 +0000 Maha Othman http://www.pt-vwd.org/qmp-ls-distributes-an-announcement-regarding-the-canadian-pt-vwd-project/ March 15 2008

QMP-LS (Quality Mangament Program - Labaoratory Service) distributes an announcement regarding a project to investigate the occurrence of platelet type von Willebrand Disease (PT-VWD) and differential identification from the closely similar, type 2B VWD to laboratories performing von Willebrand investigations in Ontario, Canada

]]> http://www.pt-vwd.org/qmp-ls-distributes-an-announcement-regarding-the-canadian-pt-vwd-project/feed/ Hemophilia Today Announces Participation in PT-VWD Project and Funds Renewal http://www.pt-vwd.org/hemophilia-today-announces-participation-in-pt-vwd-project/ http://www.pt-vwd.org/hemophilia-today-announces-participation-in-pt-vwd-project/#comments Fri, 22 Aug 2008 17:16:49 +0000 Maha Othman http://www.pt-vwd.org/hemophilia-today-announces-participation-in-pt-vwd-project/ April 15 2008

Hemophilia Today Announces Participation in the Platelet Type VWD Project and Canadian Hemophilia Society approved second year funding in its Spring 2008 Edition, Vol. 2.

Hemophilia Today is the official publicartion of the Canadian Hemophilia society.

Click here for more information

]]> http://www.pt-vwd.org/hemophilia-today-announces-participation-in-pt-vwd-project/feed/ Welcome to PT-VWD.org http://www.pt-vwd.org/hello-world/ http://www.pt-vwd.org/hello-world/#comments Thu, 06 Dec 2007 22:25:29 +0000 Maha Othman http://www.pt-vwd.org/?p=1 June 12 2006

Dears

Maha OthmanThe overall aim of the PT-VWD database/ registry project is to determine the frequency of this rare bleeding disorder in the world and to collect data about the molecular pathology, phenotype/ genotype correlations as well as treatment. Therefore, we invite you to complete a form that includes the main information in order to allow us to learn about your experience with PT-VWD patients and if you would like to participate in the Canadian PT-VWD project.

The objectives of the PT-VWD Registry are:

  • To document patients with Platelet- type VWD worldwide.
  • To characterize genetic abnormalities responsible for this phenotype and to determine the frequency of misdiagnoses among type 2 B VWD
  • To increase awareness among physicians, hematologists and patients about the importance of discrimination between type 2B and PT-VWD
  • To improve the understanding of natural history of the disease, diagnosis and management and to establish a standard for treatment of bleeding conditions as well as prophylaxis.

Physicians worldwide are encouraged to collaborate, share observations, and evaluation data in an effort to guide and assess future diagnostic/therapeutic interventions.

Please do not hesitate to contact us by phone or by email in case any further details are required.

Yours sincerely,

Maha Othman MD MSc PhD
othman@queensu.ca

Department of Pathology and Molecular Medicine
Queen’s University
Kingston, Ontario
Canada

This project is funded by:

CHS

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